Research has found that people with learning disabilities are more likely to die from causes that could have been prevented by good healthcare than other people. Learning disabled people die more than 16 years earlier than other people on average. The role of inadequate healthcare and unequal access to services has led to 18 recommendations detailed in this report led by Bristol University. The findings were described as a "wake-up call" by the Bristol University research team behind the “Confidential inquiry into premature deaths of people with learning disabilities”. The report can be found here www.bris.ac.uk/cipold/finalreportexecsum.pdf.
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Posted 13 May 2013 - 10:02 AM
Our young lady has profound and complex disabilities including health issues. This arises from a rare genetic condition from birth. She was originally sent home soon after birth and not expected to survive. We celebrated her 21st birthday last February. Yes, she has a life limiting condition but has already enjoyed an excellent quality of life. A few years ago we were complimented by her paediatric consultant who clearly stated that this was down to the quality of care she enjoyed.
Living day to day can cause stresses for carers under these conditions, but we continue to give of our best.
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